My first two. I do realize it's a terrible picture. It's really not all crooked like. I'm not a good self photo taker.
A blog about living and coping with my mother who has FTD. There's only one thing you can do and that is to laugh now and then cry later. This disease has been part of our lives for many years now. There are good days and bad but as it progresses the bad days out number the good days so it is important to remember to laugh and smile.
Saturday, May 25, 2013
For you, Mom.
More babies.
Just an update Mother has a new addition to her babies and it's a butterfly. She gives them lots of love and attention. We definitely get jealous.
Miracles do happen
Well, kind of. Little everyday miracles like this:
My beautiful lady was zonked out on the couch when I got home from work so I stayed with her and Melanie in the living room watching tv. Soon a loud noise woke her up and she was babbling dream nonsense at us walked of to the cat pointed, turned around, walked herself upstairs, went to her bed, took her sandals and laid herself in bed. This may not seem like much but for us it was like we looked at each other in disbelief and thought "did that just happen?". It was amazing. Blew my mind. Maybe when she she was sleeping walking and whilst sleeping walking she is dementia free? Haha, just kidding. She's still wild but I was so proud my baby girl on this night.
Friday, May 17, 2013
I'm alive. I really am. I made it through a terrible week. Well, it was terrible at the moment but now just another little bump in the road. It was one of those weeks where I thought that someone was play a sick joke on me, testing my patience and my sensitive soul. Though it was a very tough week there were some good moments that kept me going and half-smiling.
Saturday night we had Karen's (future sis-in-law) bachelorette party which meant that we were all going to have a night out without Mother and that the boys were going to have a sleepover with Mother. We had to be ready by 330 at the latest and it felt like it took years for us to get ready especially with the constant sound of Mother trying to rush us. Don't get ready before Mother because when she is ready to go she is ready to go! Melanie, Kendra, and I started our normal routine of getting ready which involves one person being with Mother at all time while the other two do their thing. At the same time Mother is switching which person she is with she switches which stations she is at. Melanie will shower her, Kendra will dress her and I will groom her or whichever order suits us best.
This day Mother was very antsy and it had felt like I already had a good dose of Mother this week and I was just ready to leave the house so her repetitious anxious demented ways were testing my patience. Silence is golden; it really is. To distract her I made sure to take extra long brushing her hair and pampering her. I even gave her a back rub. She really loves back rubs. Melanie and I our convinced that she takes advantage of our back rubs. But they are very therapeutic for her. Any sort of touching really. Kendra loves to hold her hand, Melanie her back, and I rub her cheek a lot. If one doesn't soothe her another usually does. Well, that a sedative and Meredith bunny. The rubbing didn't occupy her long enough. We were trying to do our finishing touches and Mother had collected 4 purses and was pacing saying, "Come on, are you ready? I'm ready. Let's gooooooooo." There was so much repetition that we took turns answering her. Several rushed minutes later we were out the door. I made sure to go upstairs and get Meredith bunny for her because I knew she'd be happy to have her for the night away from home. Of course when she saw the bunny she said, "Aw, there's my baby."
Saturday night we had Karen's (future sis-in-law) bachelorette party which meant that we were all going to have a night out without Mother and that the boys were going to have a sleepover with Mother. We had to be ready by 330 at the latest and it felt like it took years for us to get ready especially with the constant sound of Mother trying to rush us. Don't get ready before Mother because when she is ready to go she is ready to go! Melanie, Kendra, and I started our normal routine of getting ready which involves one person being with Mother at all time while the other two do their thing. At the same time Mother is switching which person she is with she switches which stations she is at. Melanie will shower her, Kendra will dress her and I will groom her or whichever order suits us best.
This day Mother was very antsy and it had felt like I already had a good dose of Mother this week and I was just ready to leave the house so her repetitious anxious demented ways were testing my patience. Silence is golden; it really is. To distract her I made sure to take extra long brushing her hair and pampering her. I even gave her a back rub. She really loves back rubs. Melanie and I our convinced that she takes advantage of our back rubs. But they are very therapeutic for her. Any sort of touching really. Kendra loves to hold her hand, Melanie her back, and I rub her cheek a lot. If one doesn't soothe her another usually does. Well, that a sedative and Meredith bunny. The rubbing didn't occupy her long enough. We were trying to do our finishing touches and Mother had collected 4 purses and was pacing saying, "Come on, are you ready? I'm ready. Let's gooooooooo." There was so much repetition that we took turns answering her. Several rushed minutes later we were out the door. I made sure to go upstairs and get Meredith bunny for her because I knew she'd be happy to have her for the night away from home. Of course when she saw the bunny she said, "Aw, there's my baby."
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