It is a running joke in the family that Mother loves Max, the dog, more than she loves us and you know what it might be true. We always ask her who she loves more and most of the time she responds Max. Nowadays, when we go out to family dinners or events she'll ask about leaving after 15 minutes because she has to go home and take care of the dog. She is constantly asking about if when we are gone or if we plan on going somewhere she asks if he'll be okay.
I caught her doing this recently (i'm not referring to her plucking her eyebrows out because we all know thats a daily occurrence)...
Yup, that's my girl holding hands with her favorite being!!!
A blog about living and coping with my mother who has FTD. There's only one thing you can do and that is to laugh now and then cry later. This disease has been part of our lives for many years now. There are good days and bad but as it progresses the bad days out number the good days so it is important to remember to laugh and smile.
Monday, December 27, 2010
Its been so long
Yet again, I became so busy that I couldnt post :( but don't worry I have everything written down. I started carrying a little book around so every time Mother did something I wrote it down as a little reminder. Since, the last time I posted we've gone to an Eagles game, traumatic and fun, had doctors appointments and of course Christmas. So much has happened in between these times too. Well, not so much has happened but Mother continues to be entertaining, and I've captured some of it in pictures and on video!
Sunday, November 28, 2010
12:57 ...She has risen AGAIN!
If you are reading these post before the one that says Who is it please go back to that one...
So, she is up again and this time I captured her in action. She came down, asked where everyone was, said goodnight, asked where everyone was again, asked if the dog was ok, and then said goodnight again. I wonder if she'll come visit again...I'm guessing yes.
That's my girl in the living room entrance also that is the front window she tends to stare out of along with her couch window and her room window (her garbage stalking window)
Mom, come sit here and hug me
Part of my Mom's disease causes her to be apathetic which means she shows no emotion and this is not an understatement. It is rare when we see Mother show emotion and honestly when I did she her light up with emotion was when we gave her ice cream sundaes, cakes, etc but now it doesn't happen so much.
So coming home and wanting to get some comfort from mommy can actually be counterproductive but the other day Kendra came home and told Mother to come sit next to her and hug her and this is what happened:
Yes, she was "comforting" Kendra but can we also just take a wee look at Mother doing one of her favorite activities....did you spot it? If you guessed plucking her chin hairs you were RIGHT!!!! Good job. To be honest Mother did seem like you genuinely had the motherly instinct still in her which we normally don't see because she is giving it to the dog.
So coming home and wanting to get some comfort from mommy can actually be counterproductive but the other day Kendra came home and told Mother to come sit next to her and hug her and this is what happened:
Yes, she was "comforting" Kendra but can we also just take a wee look at Mother doing one of her favorite activities....did you spot it? If you guessed plucking her chin hairs you were RIGHT!!!! Good job. To be honest Mother did seem like you genuinely had the motherly instinct still in her which we normally don't see because she is giving it to the dog.
Who is it?
Yet another phase mother is going through. It is quite normal for mother to come down if she hears us and asks us what we are doing but now she is over the top. I've been home for about 2 hrs and i've literally seen/heard from mother 6 different times. She was asleep when I got home and about 30 mins after I got home she came downstairs looking like a 4 year old that just woke up and asked what we were doing and if the dog was ok. After telling her the dog was fine she went back to bed then I went up later and got creeped out (my mother is sooooo creepy sometimes, in a funny way of course) because she was sitting on the corner of her bed in complete darkness and she quitely asked me what I was doing. I then took her slippers off of her and tucked her in and tried to tuck her in tightly hoping that it would prevent her from getting up AGAIN.That was an EPIC fail. Yet again she came down asking what we were doing and if the dog was ok (I wish she liked me as much as the dog). This previous awakening happened around 11pm and when I went upstairs again at 1215 I heard this strange noise and couldnt figure it out then finally realized Mother was shouting or attempting to shout, (she has always been quite lady) "who is it?" Like seriously, who does she think it is? Once again I let her know it was me and wished her a good night. I haven't seen or heard from her in 31 mins...lets hope she really is sleeping this time.
Monday, November 22, 2010
FTD Article
Erik, my brother, gave me this article. Sorry, my usually wittiness isnt present in this blog.
Oh FTD, maybe i'll explain a little bit of my mother's actions for my readers.
Oh FTD, maybe i'll explain a little bit of my mother's actions for my readers.
Monday, November 15, 2010
The Pepsi Graveyard
As previously mentioned Mother is absolutely obsessed with her Pepsi aka her crack. She is constantly talking about it and always wants a new bottle, we always get her small bottles because it is less complicated that way. The funny thing is that she always thinks that the bottles are empty or bad so she has tons of bottles next to her and maybe one of them is almost empty. Whenever she is near the hutch, our counter type thing, we have to ask her what she is doing and she says i need more and we have to reassure her that she actually has Pepsi.
These four bottles are just within a 12 hr period and I had to convince her she had plenty because she kept wandering back over to where the Pepsi bottles are. Also, I'd like to point out that she is now drinking DIET Pepsi basically because over the last few years Mother has been gaining some pounds and has quite the fajumic (fat stomach, a Josh Benson word invention to describe basically the Benson gut). I think we've had to get her a set of jeans like 3 times. Another reason for her sudden weight game may be because she is loves two other things besides Pepsi which are Ice Cream and Little Debbie or Tasty Cake snack, I mean who doesn't? We definitely are able to control her ice cream eating because she can't figure out where it is but she knows exactly where the snacks are and sometimes when we aren't watching we'll come down and she'll have eaten 4 Oatmeal Creme pies. Oatmeal Creme pies are pretty amazing but you think after the first she'd be sick of how sugary they are...obviously nice. Viva la fajumic!!!!
These four bottles are just within a 12 hr period and I had to convince her she had plenty because she kept wandering back over to where the Pepsi bottles are. Also, I'd like to point out that she is now drinking DIET Pepsi basically because over the last few years Mother has been gaining some pounds and has quite the fajumic (fat stomach, a Josh Benson word invention to describe basically the Benson gut). I think we've had to get her a set of jeans like 3 times. Another reason for her sudden weight game may be because she is loves two other things besides Pepsi which are Ice Cream and Little Debbie or Tasty Cake snack, I mean who doesn't? We definitely are able to control her ice cream eating because she can't figure out where it is but she knows exactly where the snacks are and sometimes when we aren't watching we'll come down and she'll have eaten 4 Oatmeal Creme pies. Oatmeal Creme pies are pretty amazing but you think after the first she'd be sick of how sugary they are...obviously nice. Viva la fajumic!!!!
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