Well after reading the post below and talking to Mer and Mel when they came to pick up Mother, it's no surprise she did not want to come over right away. We have had this problem before but I know when she sees Josh her face just lights up with joy to see her baby boy!
We had a good experience with mother tonight. Josh and I have a hummingbird feeder and have been trying to catch seeing hummingbirds feeding out of it. It just so happens Josh saw one and noticed the feeder was low and I had just filled it 2 weeks ago. I opened the curtain and waited and don't you know we saw 2 hummingbirds about 10 times each. They are obsessed with our feeder. Mother and I kept watching the birds come back and forth it was fun. She liked seeing them float in the air.
I would like to say mother started to want snacks but I would be lying. I decided I wanted some Doritos my fav and brought out some cookies for mother cause I know she likes them. Well as I was eating she got very comfy on the couch and was not moving for anything not even a cookie. Eventually she decided she wanted some and as she went to grab a cookie she went "moooooo". Now I don't know if you have ever heard the Benson Bachelorettes do this but basically when you know you should not be eating something and you do it anyway, this is cause for a "moo". I looked at mother and said did you just "moo" at yourself? Her response a big smile and giggle.
It's nice to know mother feels okay staying with Josh and I at our place. I think some basic reasons would be 1. we have AC, 2. we feed her pepsi. 3. We always have a spread of junk food for her. and 4. there are no "people" just one "woman" out the window.... I am not sure who this woman is but she is outside our window according to mother.
All and all this was a "good" mother visit and she was not concerned with the people and it seemed she felt relaxed. We all hung out and watched NCIS, ate snacks, eventually ate dinner and watched some hummingbirds until Mel and Mer came to get her. As soon as they showed up mother knew it was time to go after repeatably asking she got up and said she was leaving waved goodbye and then teared up at that of leaving us.....lol jk..... she teared up because she wanted to leave so bad! Ha... we don't take it personal who would want to stay with weird Josh pelvic thrusting and talking about beating boxes all night..... HAHAHAHAHA
A blog about living and coping with my mother who has FTD. There's only one thing you can do and that is to laugh now and then cry later. This disease has been part of our lives for many years now. There are good days and bad but as it progresses the bad days out number the good days so it is important to remember to laugh and smile.
Friday, August 19, 2011
Anne
Josh and Karen wanted to hang out with Mother today so when we got up this morning we told Mother that she was going to go over. She was not pleased at all. Melanie called me downstairs because Mother was crying because she didn't want to go. Kendra came down too and does a better job at directing Mother than I do. Once again with our nicknames, we tend to go Anne, what's wrong? We knew if he came over she'd be all happy so we just comforted her and gave her some of her special snacks, hehe. She was worried and upset about it for about an hour until Josh came over and she smiled so big we he came in. She forgot everything and was ready to go hang out. She did ask several times when she'd be back but she seemed very happy. We got her ready and dressed up to go out and have a good time. She left happy. We will see how she does.
We keep asking her if she wants to go hiking again (She went on Wednesday with Melanie and Kendra) and she keeps rolling her eyes, saying it was so big, and that she doesn't want to do it again but giggles at the same time.
We keep asking her if she wants to go hiking again (She went on Wednesday with Melanie and Kendra) and she keeps rolling her eyes, saying it was so big, and that she doesn't want to do it again but giggles at the same time.
Thursday, August 18, 2011
Mother's baby
Mother woke up early again,which is not a surprise considering she wakes up about 5 times during the night/morning and then will wake up during the morning and try and nap on the couch all day. Obviously, it is a mixture between the disease, the anti-psychotics and the sedatives. We often sing, "I want to be sedated" because Mother needs to be sedated a lot. Not only do we have to give her anti-psychotics in the morning but we have to triple it in the evening and sometimes that doesn't even help. Those damn "people" are everywhere. They want to kick us out of our house, they don't like Mother, and they rule Mother's world. Good thing we are fluent in dementia. We can help her through dealing with the "people."
When I slept with Mother the other night she kept waking up and talking nonsense but in between that she would bring over the kitten. It really would have not meant too much to me but the other morning she woke up and wouldn't lay back down; I couldn't figure out why until I stepped closer and saw that she had tucked in the kitty to her bed.
Tonight when Mother and the girls got home Mother was soon reunited with her kitty.
Fluent Dementia
Kendra and Mother came to visit me at work; they didn't actually visit for more than five minutes but I made sure to visit Mother to make sure she was okay. I went outside to see how she was and she asked me if I worked today and I told her that I was at work and she asked how long and I told her I'd be home in a few hours. I didn't put anything in quotes because she doesn't normally speak sentences nor coherent phrases but at this point the "Benson Bachelorette's" are completely fluent in dementia. We know exactly which Meredith she is talking about (it could be anyone of us) and we usually know what baby she is talking about, which includes dogs, cats, grandbabies, and any other children/infants.
Wednesday, August 17, 2011
Badasses wear their sunglasses at night, right?
Mother always loved Avon and Kendra surprised her with some Avon stuff a few weeks ago including her sunglasses. She loves them. She'd keep them on her head all day if we didn't do something about it. Kendra took this picture of Mother tonight when they were out grocery shopping. She was very tired tonight because she didn't get her nap in today!
Monday, August 15, 2011
Cussing out the radio.
There are definitely times when I get upset and angry with the disease and somehow I always manage to make myself laugh in the end (sometimes it takes hours or more). I was driving in my car to get some snack for Mother and I was really upset so it was a good time to just have some me time. Also, I needed to get snacks that we could better hide her pills in. I just got up the road and Queen's "Bohemian Rhapsody" came on which I normally love, not today. The first thing I heard when I turned the station to this song was "Mama...." Just hearing Mama was breaking my heart. Of course, I changed the station and what comes on? John Mayer's "Daughters." At that point, it didn't matter what song it was because I was going to somehow relate it to my Mom and continue to kind of release all of my emotions. Not only was a crying in the car but I was also cussing out the radio. The radio took it well and I felt a lot better afterwards. I laugh thinking about it now; I remember myself literally calling the radio a piece of shit and blaming it for everything.
It's going to be okay.
Mother likes to talk about dying a lot so it has become a normal part of our lives. There are different ways of dealing with it not from my perspective but from trying to help Mother feel better. Yesterday morning I went to use the ladies room and left the door open because Mother was in Melanie's room across from the bathroom. As I get ready to sit I see Mother start pulling down her pants getting ready to use the "toilet" which ironically is her spare bed in Melanie's room. My cat like reflexes took over and I was up saving the bed and landed Mother down on the actual toilet! After that Mother turned to me and said, "I want to die", I looked back at her and said, "You think you're special or something?" and she smiled and with that smile she forgot she wanted to die. Two close calls avoided.
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